Individuals
1 in 5 Australians over the age of 45 complain of chronic pain (a major symptom of EDS, hEDS & HSD)
Up to 90% of HSD, hEDS and EDS patients present to GPs and physios with pain as their first symptom
More than 50% of patients with EDS and hEDS report clinician-related patient traumatisation and up to 90% felt invalidated by their clinicians
More than 50% of patients with Autism Spectrum also are hypermobile
Up to 46% of children with EDS and HSD are also diagnosed with ADHD
EDS, hEDS, and HSD disproportionately impact females, with 80-90% of cases occurring in women
57% of patients with chronic pain in Australia rely on pain medications/analgesics
17-22 Years - Average time to get a HSD or hEDS diagnosis
Allied Health
1 in 5 Australians over the age of 45 complain of chronic pain (a major symptom of EDS, hEDS & HSD)
Up to 90% of HSD, hEDS and EDS patients present to GPs and physios with pain as their first symptom
More than 50% of patients with EDS and hEDS report clinician-related patient traumatisation and up to 90% felt invalidated by their clinicians
More than 50% of patients with Autism Spectrum also are hypermobile
Up to 46% of children with EDS and HSD are also diagnosed with ADHD
EDS, hEDS, and HSD disproportionately impact females, with 80-90% of cases occurring in women
57% of patients with chronic pain in Australia rely on pain medications/analgesics
17-22 Years - Average time to get a HSD or hEDS diagnosis
Medical Practitioners
1 in 5 Australians over the age of 45 complain of chronic pain (a major symptom of EDS, hEDS & HSD)
Up to 90% of HSD, hEDS and EDS patients present to GPs and physios with pain as their first symptom
More than 50% of patients with EDS and hEDS report clinician-related patient traumatisation and up to 90% felt invalidated by their clinicians
More than 50% of patients with Autism Spectrum also are hypermobile
Up to 46% of children with EDS and HSD are also diagnosed with ADHD
EDS, hEDS, and HSD disproportionately impact females, with 80-90% of cases occurring in women
57% of patients with chronic pain in Australia rely on pain medications/analgesics
17-22 Years - Average time to get a HSD or hEDS diagnosis
Nearly a decade after the publication of the 2017 International Classification of the Ehlers-Danlos Syndromes, significant change is approaching [1, 2]. The Road to 2026 is an international scientific program reviewing how Ehlers-Danlos syndromes (EDS), hypermobile Ehlers-Danlos syndrome (hEDS) and hypermobility spectrum disorders (HSD) are classified, recognised, diagnosed and ultimately managed [3]. Importantly, the Road […]
