Individuals
1 in 5 Australians over the age of 45 complain of chronic pain (a major symptom of EDS, hEDS & HSD)
Up to 90% of HSD, hEDS and EDS patients present to GPs and physios with pain as their first symptom
More than 50% of patients with EDS and hEDS report clinician-related patient traumatisation and up to 90% felt invalidated by their clinicians
More than 50% of patients with Autism Spectrum also are hypermobile
Up to 46% of children with EDS and HSD are also diagnosed with ADHD
EDS, hEDS, and HSD disproportionately impact females, with 80-90% of cases occurring in women
57% of patients with chronic pain in Australia rely on pain medications/analgesics
Allied Health
1 in 5 Australians over the age of 45 complain of chronic pain (a major symptom of EDS, hEDS & HSD)
Up to 90% of HSD, hEDS and EDS patients present to GPs and physios with pain as their first symptom
More than 50% of patients with EDS and hEDS report clinician-related patient traumatisation and up to 90% felt invalidated by their clinicians
More than 50% of patients with Autism Spectrum also are hypermobile
Up to 46% of children with EDS and HSD are also diagnosed with ADHD
EDS, hEDS, and HSD disproportionately impact females, with 80-90% of cases occurring in women
57% of patients with chronic pain in Australia rely on pain medications/analgesics
Medical Practitioners
1 in 5 Australians over the age of 45 complain of chronic pain (a major symptom of EDS, hEDS & HSD)
Up to 90% of HSD, hEDS and EDS patients present to GPs and physios with pain as their first symptom
More than 50% of patients with EDS and hEDS report clinician-related patient traumatisation and up to 90% felt invalidated by their clinicians
More than 50% of patients with Autism Spectrum also are hypermobile
Up to 46% of children with EDS and HSD are also diagnosed with ADHD
EDS, hEDS, and HSD disproportionately impact females, with 80-90% of cases occurring in women
57% of patients with chronic pain in Australia rely on pain medications/analgesics
Why standing up feels harder in summer for people with HSD, hEDS and EDS… and POTS For many people living with Hypermobile Ehlers-Danlos Syndrome (hEDS), other types of Ehlers-Danlos Syndrome (EDS), or Hypermobility Spectrum Disorders (HSD), Postural Orthostatic Tachycardia Syndrome (POTS) and other forms of dysautonomia can be just as disabling as joint pain, subluxations, […]
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