Individuals
1 in 5 Australians over the age of 45 complain of chronic pain (a major symptom of EDS, hEDS & HSD)
Up to 90% of HSD, hEDS and EDS patients present to GPs and physios with pain as their first symptom
More than 50% of patients with EDS and hEDS report clinician-related patient traumatisation and up to 90% felt invalidated by their clinicians
More than 50% of patients with Autism Spectrum also are hypermobile
Up to 46% of children with EDS and HSD are also diagnosed with ADHD
EDS, hEDS, and HSD disproportionately impact females, with 80-90% of cases occurring in women
57% of patients with chronic pain in Australia rely on pain medications/analgesics
17-22 Years - Average time to get a HSD or hEDS diagnosis
Allied Health
1 in 5 Australians over the age of 45 complain of chronic pain (a major symptom of EDS, hEDS & HSD)
Up to 90% of HSD, hEDS and EDS patients present to GPs and physios with pain as their first symptom
More than 50% of patients with EDS and hEDS report clinician-related patient traumatisation and up to 90% felt invalidated by their clinicians
More than 50% of patients with Autism Spectrum also are hypermobile
Up to 46% of children with EDS and HSD are also diagnosed with ADHD
EDS, hEDS, and HSD disproportionately impact females, with 80-90% of cases occurring in women
57% of patients with chronic pain in Australia rely on pain medications/analgesics
17-22 Years - Average time to get a HSD or hEDS diagnosis
Medical Practitioners
1 in 5 Australians over the age of 45 complain of chronic pain (a major symptom of EDS, hEDS & HSD)
Up to 90% of HSD, hEDS and EDS patients present to GPs and physios with pain as their first symptom
More than 50% of patients with EDS and hEDS report clinician-related patient traumatisation and up to 90% felt invalidated by their clinicians
More than 50% of patients with Autism Spectrum also are hypermobile
Up to 46% of children with EDS and HSD are also diagnosed with ADHD
EDS, hEDS, and HSD disproportionately impact females, with 80-90% of cases occurring in women
57% of patients with chronic pain in Australia rely on pain medications/analgesics
17-22 Years - Average time to get a HSD or hEDS diagnosis
Hypermobile Ehlers-Danlos Syndrome (hEDS) and Hypermobility Spectrum Disorder (HSD) are often associated with flexible or “double-jointed” joints. However, both are increasingly recognised as complex, multisystem connective tissue disorders that can affect far more than simply your muscles and joints [1, 2, 3]. Having a diagnosis of HSD can be just as life-impacting and debilitating as […]
