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Tag: HSD

The Future of hEDS-HSD and EDS: The Road to 2026

Nearly a decade after the publication of the 2017 International Classification of the Ehlers-Danlos Syndromes, significant change is approaching [1, 2]. The Road to 2026 is an international scientific program reviewing how Ehlers-Danlos syndromes (EDS), hypermobile Ehlers-Danlos syndrome (hEDS) and hypermobility spectrum disorders (HSD) are classified, recognised, diagnosed and ultimately managed [3]. Importantly, the Road […]

Why Your Hypermobility Matters: The Silent Risks of Undiagnosed Symptomatic Hypermobility

If you’re flexible and have other health symptoms, it may be time to take it SERIOUSLY. As a physiotherapist, I have assessed and treated hundreds of people with Joint Hypermobility, Hypermobility Spectrum Disorder (HSD), and hypermobile Ehlers-Danlos syndrome (hEDS). Comments I hear again and again include: “I’ve always been bendy or flexible. I just didn’t […]

Understanding the Invisible Illnesses of Hypermobility

Hypermobility, HSD and hEDS

Hypermobile Ehlers-Danlos Syndrome (hEDS) and Hypermobility Spectrum Disorder (HSD) are often associated with flexible or “double-jointed” joints. However, both are increasingly recognised as complex, multisystem connective tissue disorders that can affect far more than simply your muscles and joints [1, 2, 3]. Having a diagnosis of HSD can be just as life-impacting and debilitating as […]

Hypermobility Spectrum Disorder (HSD): Symptoms, Diagnosis and Management

If you’ve been told your joints are “just hypermobile” – or you’ve been living with pain, fatigue, and a long list of symptoms that no one seems to be able to explain – you’re not alone. Many of my patients come to me having spent years being dismissed, misdiagnosed, or simply told to push through […]

Preparing for POTS season – Staying Stronger in Summer

POTS in Hypermobility

Why standing up feels harder in summer for people with HSD, hEDS and EDS… and POTS For many people living with Hypermobile Ehlers-Danlos Syndrome (hEDS), other types of Ehlers-Danlos Syndrome (EDS), or Hypermobility Spectrum Disorders (HSD), Postural Orthostatic Tachycardia Syndrome (POTS) and other forms of dysautonomia can be just as disabling as joint pain, subluxations, […]

Why getting the correct hypermobility disorder diagnosis matters

What are Hypermobility Spectrum Disorders (HSD), Hypermobile Ehlers-Danlos Syndrome (hEDS), and Ehlers-Danlos Syndromes (EDS)? Have you ever been told you’re “double-jointed” or unusually flexible? Joint hypermobility simply means your joints move beyond the typical range of motion. For some, especially dancers or gymnasts, this can be an advantage. But for others, it’s not just about […]

Hypermobility treatments and effective pain management

If you or someone you know has Hypermobility, it means that your joints can move more than most people’s. This can be a cool party trick, but it can also come with some challenges. Exploring Hypermobility treatments is essential for maintaining joint stability and overall well-being. Let’s talk about how to manage and treat Hypermobility […]

How is Hypermobility and Hypermobility Spectrum Disorder (HSD) diagnosed?

If you have Generalised Joint Hypermobility (GJH), you’re not alone – it is a common condition, affecting anywhere from 2% to 57% of people [1]. This large variation in population percentages is due to differences in how Hypermobility diagnosis is done within each study, as well as differences in study populations, methods and criteria used. […]

Common symptoms of Hypermobility and causes

Do you have many seemingly unrelated body wide pain, fatigue or health symptoms? These may indicate that you have hypermobility. Hypermobility refers to joints that move beyond the normal range of motion. It’s often described as being “double-jointed” and can be present in various joints such as elbows, wrists, fingers, shoulders and knees [1]. Symptoms […]