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Asymptomatic vs Symptomatic Hypermobility: When being “bendy” matters, and when it doesn’t
Being flexible is not a problem in itself. Many people can bend a thumb back or drop into the splits and go through life with no pain, no injuries and nothing to manage. For others, that same flexibility comes with pain, recurring injuries, fatigue and other symptoms (and is linked with conditions such as anxiety) […]
The Future of hEDS-HSD and EDS: The Road to 2026
Nearly a decade after the publication of the 2017 International Classification of the Ehlers-Danlos Syndromes, significant change is approaching [1, 2]. The Road to 2026 is an international scientific program reviewing how Ehlers-Danlos syndromes (EDS), hypermobile Ehlers-Danlos syndrome (hEDS) and hypermobility spectrum disorders (HSD) are classified, recognised, diagnosed and ultimately managed [3]. Importantly, the Road […]
Why Your Hypermobility Matters: The Silent Risks of Undiagnosed Symptomatic Hypermobility
If you’re flexible and have other health symptoms, it may be time to take it SERIOUSLY. As a physiotherapist, I have assessed and treated hundreds of people with Joint Hypermobility, Hypermobility Spectrum Disorder (HSD), and hypermobile Ehlers-Danlos syndrome (hEDS). Comments I hear again and again include: “I’ve always been bendy or flexible. I just didn’t […]
Understanding the Invisible Illnesses of Hypermobility
Hypermobile Ehlers-Danlos Syndrome (hEDS) and Hypermobility Spectrum Disorder (HSD) are often associated with flexible or “double-jointed” joints. However, both are increasingly recognised as complex, multisystem connective tissue disorders that can affect far more than simply your muscles and joints [1, 2, 3]. Having a diagnosis of HSD can be just as life-impacting and debilitating as […]
Preparing for POTS season – Staying Stronger in Summer
Why standing up feels harder in summer for people with HSD, hEDS and EDS… and POTS For many people living with Hypermobile Ehlers-Danlos Syndrome (hEDS), other types of Ehlers-Danlos Syndrome (EDS), or Hypermobility Spectrum Disorders (HSD), Postural Orthostatic Tachycardia Syndrome (POTS) and other forms of dysautonomia can be just as disabling as joint pain, subluxations, […]
Why getting the correct hypermobility disorder diagnosis matters
What are Hypermobility Spectrum Disorders (HSD), Hypermobile Ehlers-Danlos Syndrome (hEDS), and Ehlers-Danlos Syndromes (EDS)? Have you ever been told you’re “double-jointed” or unusually flexible? Joint hypermobility simply means your joints move beyond the typical range of motion. For some, especially dancers or gymnasts, this can be an advantage. But for others, it’s not just about […]
What Is Hypermobility? Symptoms, Causes & When It Matters
What is Hypermobility? Hypermobility refers to the ability of some or all of a person’s joints to move beyond the normal range of motion. This condition is often described as having loose joints or being “double-jointed”. Some patients describe it to me as “cracking or popping joints” or “feeling not well held together.” While many […]
Living with Hypermobile Ehlers Danlos Syndrome (hEDS): Treatment and management approaches
If you or someone you know has Hypermobile Ehlers-Danlos Syndrome (hEDS), treatment focuses on managing symptoms and improving quality of life. hEDS means that your joints move beyond the typical range, making you more flexible, but this extra bendiness can also impact other parts of your body and its overall functioning. While Hypermobility and being […]
Step-by-step guide to diagnosing Hypermobile Ehlers-Danlos Syndrome (hEDS)
Diagnosing Hypermobile Ehlers-Danlos Syndrome (hEDS) can be challenging, as symptoms vary widely, and there is no specific genetic or blood test to confirm it. Instead, doctors rely on clinical criteria, as outlined in the 2017 International Classification of Ehlers-Danlos Syndromes [1]. The diagnostic process involves multiple steps, which we break down in detail below. However, […]
Hypermobile Ehlers-Danlos Syndrome (hEDS) symptoms and causes
What is Hypermobile Ehlers-Danlos Syndrome (hEDS)? Hypermobile Ehlers-Danlos Syndrome (hEDS) is one of 13 types of Ehlers-Danlos Syndromes (EDS), a group of connective tissue disorders that affect collagen and other extracellular matrix proteins that are responsible for giving our skin, joints, and blood vessels strength and flexibility [1]. hEDS is a complex and often misunderstood […]