Why getting the correct hypermobility disorder diagnosis matters

What are Hypermobility Spectrum Disorders (HSD), Hypermobile Ehlers-Danlos Syndrome (hEDS), and Ehlers-Danlos Syndromes (EDS)? Have you ever been told you’re “double-jointed” or unusually flexible? Joint hypermobility simply means your joints move beyond the typical range of motion. For some, especially dancers or gymnasts, this can be an advantage. But for others, it’s not just about […]

What is Hypermobility and why does it matter?

What is Hypermobility? Hypermobility refers to the ability of some or all of a person’s joints to move beyond the normal range of motion. This condition is often described as having loose joints or being “double-jointed”. Some patients describe it to me as “cracking or popping joints” or “feeling not well held together.” While many […]

Ehlers-Danlos Syndrome (EDS) care: Why you need a whole team, not just one doctor

Ehlers-Danlos Syndrome (EDS) care is essential for managing this rare and complex genetic condition that affects the connective tissues in your body. This means it can impact everything from your joints and skin to your blood vessels, gut, and more. If you have EDS, you might experience overly flexible (hypermobile) joints, skin that bruises or […]

How is Ehlers Danlos Syndrome (EDS) diagnosed?

Getting a diagnosis for Ehlers-Danlos Syndrome (EDS) usually starts with seeing an EDS or Hypermobile aware Allied health professional or your GP.  They will ask about your symptoms and medical history. The process of getting a diagnosis of Ehlers-Danlos Syndrome (EDS) generally involves several steps, as it can be complex due to the wide variety […]

Understanding the Ehlers-Danlos Syndromes (EDS), their symptoms and causes

If you’ve been diagnosed with Ehlers-Danlos Syndrome (EDS) or suspect you might have it, you likely have questions about Ehlers-Danlos Syndrome symptoms, causes, and the different types. Understanding how EDS affects your body can help you manage symptoms and seek the right care. Ehlers-Danlos Syndrome (EDS) is a group of connective tissue disorders that affect […]

Hypermobility treatments and effective pain management

If you or someone you know has Hypermobility, it means that your joints can move more than most people’s. This can be a cool party trick, but it can also come with some challenges. Exploring Hypermobility treatments is essential for maintaining joint stability and overall well-being. Let’s talk about how to manage and treat Hypermobility […]

How is Hypermobility and Hypermobility Spectrum Disorder (HSD) diagnosed?

If you have Generalised Joint Hypermobility (GJH), you’re not alone – it is a common condition, affecting anywhere from 2% to 57% of people [1]. This large variation in population percentages is due to differences in how Hypermobility diagnosis is done within each study, as well as differences in study populations, methods and criteria used. […]