Tag: Diagnosis

The Future of hEDS-HSD and EDS: The Road to 2026

Nearly a decade after the publication of the 2017 International Classification of the Ehlers-Danlos Syndromes, significant change is approaching [1, 2]. The Road to 2026 is an international scientific program reviewing how Ehlers-Danlos syndromes (EDS), hypermobile Ehlers-Danlos syndrome (hEDS) and hypermobility spectrum disorders (HSD) are classified, recognised, diagnosed and ultimately managed [3]. Importantly, the Road […]

Ehlers Danlos Syndrome Test – What You Really Need to Know

If you have spent years searching for answers about your bendy joints, unexplained pain and a body that just does not behave the way other people’s seem to, I want you to know something straight away: you are not imagining it, and you are not alone. As a physiotherapist who works with hypermobile people every […]

Why Your Hypermobility Matters: The Silent Risks of Undiagnosed Symptomatic Hypermobility

If you’re flexible and have other health symptoms, it may be time to take it SERIOUSLY. As a physiotherapist, I have assessed and treated hundreds of people with Joint Hypermobility, Hypermobility Spectrum Disorder (HSD), and hypermobile Ehlers-Danlos syndrome (hEDS). Comments I hear again and again include: “I’ve always been bendy or flexible. I just didn’t […]

Hypermobility Spectrum Disorder (HSD): Symptoms, Diagnosis and Management

If you’ve been told your joints are “just hypermobile” – or you’ve been living with pain, fatigue, and a long list of symptoms that no one seems to be able to explain – you’re not alone. Many of my patients come to me having spent years being dismissed, misdiagnosed, or simply told to push through […]

How to do a Hypermobility Test: Understanding the Beighton Score

What is Hypermobility? Hypermobility simply means that some or all of your joints move beyond the normal range expected for that joint. For many people, this flexibility is harmless; a natural variation often seen in dancers, gymnasts, various ethnicities or children. However, for others, hypermobility can come with pain, fatigue, instability, or repeated injuries, which […]

Why getting the correct hypermobility disorder diagnosis matters

What are Hypermobility Spectrum Disorders (HSD), Hypermobile Ehlers-Danlos Syndrome (hEDS), and Ehlers-Danlos Syndromes (EDS)? Have you ever been told you’re “double-jointed” or unusually flexible? Joint hypermobility simply means your joints move beyond the typical range of motion. For some, especially dancers or gymnasts, this can be an advantage. But for others, it’s not just about […]

Step-by-step guide to diagnosing Hypermobile Ehlers-Danlos Syndrome (hEDS)

Diagnosing Hypermobile Ehlers-Danlos Syndrome (hEDS) can be challenging, as symptoms vary widely, and there is no specific genetic or blood test to confirm it. Instead, doctors rely on clinical criteria, as outlined in the 2017 International Classification of Ehlers-Danlos Syndromes [1]. The diagnostic process involves multiple steps, which we break down in detail below. However, […]

How is Ehlers Danlos Syndrome (EDS) diagnosed?

Getting a diagnosis for Ehlers-Danlos Syndrome (EDS) usually starts with seeing an EDS or Hypermobile aware Allied health professional or your GP.  They will ask about your symptoms and medical history. The process of getting a diagnosis of Ehlers-Danlos Syndrome (EDS) generally involves several steps, as it can be complex due to the wide variety […]

How is Hypermobility and Hypermobility Spectrum Disorder (HSD) diagnosed?

If you have Generalised Joint Hypermobility (GJH), you’re not alone – it is a common condition, affecting anywhere from 2% to 57% of people [1]. This large variation in population percentages is due to differences in how Hypermobility diagnosis is done within each study, as well as differences in study populations, methods and criteria used. […]