Category: Medical Practitioners

The Future of hEDS-HSD and EDS: The Road to 2026

Nearly a decade after the publication of the 2017 International Classification of the Ehlers-Danlos Syndromes, significant change is approaching [1, 2]. The Road to 2026 is an international scientific program reviewing how Ehlers-Danlos syndromes (EDS), hypermobile Ehlers-Danlos syndrome (hEDS) and hypermobility spectrum disorders (HSD) are classified, recognised, diagnosed and ultimately managed [3]. Importantly, the Road […]

Ehlers Danlos Syndrome Test – What You Really Need to Know

If you have spent years searching for answers about your bendy joints, unexplained pain and a body that just does not behave the way other people’s seem to, I want you to know something straight away: you are not imagining it, and you are not alone. As a physiotherapist who works with hypermobile people every […]

Why Your Hypermobility Matters: The Silent Risks of Undiagnosed Symptomatic Hypermobility

If you’re flexible and have other health symptoms, it may be time to take it SERIOUSLY. As a physiotherapist, I have assessed and treated hundreds of people with Joint Hypermobility, Hypermobility Spectrum Disorder (HSD), and hypermobile Ehlers-Danlos syndrome (hEDS). Comments I hear again and again include: “I’ve always been bendy or flexible. I just didn’t […]

Understanding the Invisible Illnesses of Hypermobility

Hypermobile Ehlers-Danlos Syndrome (hEDS) and Hypermobility Spectrum Disorder (HSD) are often associated with flexible or “double-jointed” joints. However, both are increasingly recognised as complex, multisystem connective tissue disorders that can affect far more than simply your muscles and joints [1, 2, 3]. Having a diagnosis of HSD can be just as life-impacting and debilitating as […]

What Is Hypermobility? Symptoms, Causes & When It Matters

What is Hypermobility? Hypermobility refers to the ability of some or all of a person’s joints to move beyond the normal range of motion. This condition is often described as having loose joints or being “double-jointed”. Some patients describe it to me as “cracking or popping joints” or “feeling not well held together.” While many […]

Living with Hypermobile Ehlers Danlos Syndrome (hEDS): Treatment and management approaches

If you or someone you know has Hypermobile Ehlers-Danlos Syndrome (hEDS), treatment focuses on managing symptoms and improving quality of life. hEDS means that your joints move beyond the typical range, making you more flexible, but this extra bendiness can also impact other parts of your body and its overall functioning. While Hypermobility and being […]

Step-by-step guide to diagnosing Hypermobile Ehlers-Danlos Syndrome (hEDS)

Diagnosing Hypermobile Ehlers-Danlos Syndrome (hEDS) can be challenging, as symptoms vary widely, and there is no specific genetic or blood test to confirm it. Instead, doctors rely on clinical criteria, as outlined in the 2017 International Classification of Ehlers-Danlos Syndromes [1]. The diagnostic process involves multiple steps, which we break down in detail below. However, […]

Hypermobile Ehlers-Danlos Syndrome (hEDS) symptoms and causes

What is Hypermobile Ehlers-Danlos Syndrome (hEDS)? Hypermobile Ehlers-Danlos Syndrome (hEDS) is one of 13 types of Ehlers-Danlos Syndromes (EDS), a group of connective tissue disorders that affect collagen and other extracellular matrix proteins that are responsible for giving our skin, joints, and blood vessels strength and flexibility [1]. hEDS is a complex and often misunderstood […]

Ehlers-Danlos Syndrome (EDS) care: Why you need a whole team, not just one doctor

Ehlers-Danlos Syndrome (EDS) care is essential for managing this rare and complex genetic condition that affects the connective tissues in your body. This means it can impact everything from your joints and skin to your blood vessels, gut, and more. If you have EDS, you might experience overly flexible (hypermobile) joints, skin that bruises or […]

How is Ehlers Danlos Syndrome (EDS) diagnosed?

Getting a diagnosis for Ehlers-Danlos Syndrome (EDS) usually starts with seeing an EDS or Hypermobile aware Allied health professional or your GP.  They will ask about your symptoms and medical history. The process of getting a diagnosis of Ehlers-Danlos Syndrome (EDS) generally involves several steps, as it can be complex due to the wide variety […]