Preparing for POTS season – Staying Stronger in Summer

Why standing up feels harder in summer for people with HSD, hEDS and EDS… and POTS For many people living with Hypermobile Ehlers-Danlos Syndrome (hEDS), other types of Ehlers-Danlos Syndrome (EDS), or Hypermobility Spectrum Disorders (HSD), Postural Orthostatic Tachycardia Syndrome (POTS) and other forms of dysautonomia can be just as disabling as joint pain, subluxations, […]

How to do a Hypermobility Test: Understanding the Beighton Score

What is Hypermobility? Hypermobility simply means that some or all of your joints move beyond the normal range expected for that joint. For many people, this flexibility is harmless; a natural variation often seen in dancers, gymnasts, various ethnicities or children. However, for others, hypermobility can come with pain, fatigue, instability, or repeated injuries, which […]

Why getting the correct hypermobility disorder diagnosis matters

What are Hypermobility Spectrum Disorders (HSD), Hypermobile Ehlers-Danlos Syndrome (hEDS), and Ehlers-Danlos Syndromes (EDS)? Have you ever been told you’re “double-jointed” or unusually flexible? Joint hypermobility simply means your joints move beyond the typical range of motion. For some, especially dancers or gymnasts, this can be an advantage. But for others, it’s not just about […]

What is Hypermobility and why does it matter?

What is Hypermobility? Hypermobility refers to the ability of some or all of a person’s joints to move beyond the normal range of motion. This condition is often described as having loose joints or being “double-jointed”. Some patients describe it to me as “cracking or popping joints” or “feeling not well held together.” While many […]

Living with Hypermobile Ehlers Danlos Syndrome (hEDS): Treatment and management approaches

If you or someone you know has Hypermobile Ehlers-Danlos Syndrome (hEDS), treatment focuses on managing symptoms and improving quality of life. hEDS means that your joints move beyond the typical range, making you more flexible, but this extra bendiness can also impact other parts of your body and its overall functioning. While Hypermobility and being […]

Step-by-step guide to diagnosing Hypermobile Ehlers-Danlos Syndrome (hEDS)

Diagnosing Hypermobile Ehlers-Danlos Syndrome (hEDS) can be challenging, as symptoms vary widely, and there is no specific genetic or blood test to confirm it. Instead, doctors rely on clinical criteria, as outlined in the 2017 International Classification of Ehlers-Danlos Syndromes [1]. The diagnostic process involves multiple steps, which we break down in detail below. However, […]

Hypermobile Ehlers-Danlos Syndrome (hEDS) symptoms and causes

What is Hypermobile Ehlers-Danlos Syndrome (hEDS)? Hypermobile Ehlers-Danlos Syndrome (hEDS) is one of 13 types of Ehlers-Danlos Syndromes (EDS), a group of connective tissue disorders that affect collagen and other extracellular matrix proteins that are responsible for giving our skin, joints, and blood vessels strength and flexibility [1]. hEDS is a complex and often misunderstood […]

Ehlers-Danlos Syndrome (EDS) care: Why you need a whole team, not just one doctor

Ehlers-Danlos Syndrome (EDS) care is essential for managing this rare and complex genetic condition that affects the connective tissues in your body. This means it can impact everything from your joints and skin to your blood vessels, gut, and more. If you have EDS, you might experience overly flexible (hypermobile) joints, skin that bruises or […]

How is Ehlers Danlos Syndrome (EDS) diagnosed?

Getting a diagnosis for Ehlers-Danlos Syndrome (EDS) usually starts with seeing an EDS or Hypermobile aware Allied health professional or your GP.  They will ask about your symptoms and medical history. The process of getting a diagnosis of Ehlers-Danlos Syndrome (EDS) generally involves several steps, as it can be complex due to the wide variety […]

Understanding the Ehlers-Danlos Syndromes (EDS), their symptoms and causes

If you’ve been diagnosed with Ehlers-Danlos Syndrome (EDS) or suspect you might have it, you likely have questions about Ehlers-Danlos Syndrome symptoms, causes, and the different types. Understanding how EDS affects your body can help you manage symptoms and seek the right care. Ehlers-Danlos Syndrome (EDS) is a group of connective tissue disorders that affect […]