What is Hypermobility and why does it matter?

What is Hypermobility? Hypermobility refers to the ability of some or all of a person’s joints to move beyond the normal range of motion. This condition is often described as having loose joints or being “double-jointed”. Some patients describe it to me as “cracking or popping joints” or “feeling not well held together.” While many […]

Living with Hypermobile Ehlers Danlos Syndrome (hEDS): Treatment and management approaches

If you or someone you know has Hypermobile Ehlers-Danlos Syndrome (hEDS), treatment focuses on managing symptoms and improving quality of life. hEDS means that your joints move beyond the typical range, making you more flexible, but this extra bendiness can also impact other parts of your body and its overall functioning. While Hypermobility and being […]

Step-by-step guide to diagnosing Hypermobile Ehlers-Danlos Syndrome (hEDS)

Diagnosing Hypermobile Ehlers-Danlos Syndrome (hEDS) can be challenging, as symptoms vary widely, and there is no specific genetic or blood test to confirm it. Instead, doctors rely on clinical criteria, as outlined in the 2017 International Classification of Ehlers-Danlos Syndromes [1]. The diagnostic process involves multiple steps, which we break down in detail below. However, […]

Hypermobile Ehlers-Danlos Syndrome (hEDS) symptoms and causes

What is Hypermobile Ehlers-Danlos Syndrome (hEDS)? Hypermobile Ehlers-Danlos Syndrome (hEDS) is one of 13 types of Ehlers-Danlos Syndromes (EDS), a group of connective tissue disorders that affect collagen and other extracellular matrix proteins that are responsible for giving our skin, joints, and blood vessels strength and flexibility [1]. hEDS is a complex and often misunderstood […]

Ehlers-Danlos Syndrome (EDS) care: Why you need a whole team, not just one doctor

Ehlers-Danlos Syndrome (EDS) care is essential for managing this rare and complex genetic condition that affects the connective tissues in your body. This means it can impact everything from your joints and skin to your blood vessels, gut, and more. If you have EDS, you might experience overly flexible (hypermobile) joints, skin that bruises or […]

How is Ehlers Danlos Syndrome (EDS) diagnosed?

Getting a diagnosis for Ehlers-Danlos Syndrome (EDS) usually starts with seeing an EDS or Hypermobile aware Allied health professional or your GP.  They will ask about your symptoms and medical history. The process of getting a diagnosis of Ehlers-Danlos Syndrome (EDS) generally involves several steps, as it can be complex due to the wide variety […]

Understanding the Ehlers-Danlos Syndromes (EDS), their symptoms and causes

If you’ve been diagnosed with Ehlers-Danlos Syndrome (EDS) or suspect you might have it, you likely have questions about Ehlers-Danlos Syndrome symptoms, causes, and the different types. Understanding how EDS affects your body can help you manage symptoms and seek the right care. Ehlers-Danlos Syndrome (EDS) is a group of connective tissue disorders that affect […]

Living with Hypermobility: A practical guide

Hypermobility means your joints move beyond the normal range. This can lead to pain, instability, fatigue, and even issues with digestion, circulation, and mental health. Because it affects different parts of the body, you may need to see a variety of healthcare professionals to help manage your symptoms. If you have General Joint Hypermobility (GJH) […]

Hypermobility treatments and effective pain management

If you or someone you know has Hypermobility, it means that your joints can move more than most people’s. This can be a cool party trick, but it can also come with some challenges. Exploring Hypermobility treatments is essential for maintaining joint stability and overall well-being. Let’s talk about how to manage and treat Hypermobility […]

How is Hypermobility and Hypermobility Spectrum Disorder (HSD) diagnosed?

If you have Generalised Joint Hypermobility (GJH), you’re not alone – it is a common condition, affecting anywhere from 2% to 57% of people [1]. This large variation in population percentages is due to differences in how Hypermobility diagnosis is done within each study, as well as differences in study populations, methods and criteria used. […]