Living with Hypermobile Ehlers Danlos Syndrome (hEDS): Treatment and management approaches

If you or someone you know has Hypermobile Ehlers-Danlos Syndrome (hEDS), treatment focuses on managing symptoms and improving quality of life. hEDS means that your joints move beyond the typical range, making you more flexible, but this extra bendiness can also impact other parts of your body and its overall functioning. While Hypermobility and being […]

Step-by-step guide to diagnosing Hypermobile Ehlers-Danlos Syndrome (hEDS)

Diagnosing Hypermobile Ehlers-Danlos Syndrome (hEDS) can be challenging, as symptoms vary widely, and there is no specific genetic or blood test to confirm it. Instead, doctors rely on clinical criteria, as outlined in the 2017 International Classification of Ehlers-Danlos Syndromes [1]. The diagnostic process involves multiple steps, which we break down in detail below. However, […]

Hypermobile Ehlers-Danlos Syndrome (hEDS) symptoms and causes

What is Hypermobile Ehlers-Danlos Syndrome (hEDS)? Hypermobile Ehlers-Danlos Syndrome (hEDS) is one of 13 types of Ehlers-Danlos Syndromes (EDS), a group of connective tissue disorders that affect collagen and other extracellular matrix proteins that are responsible for giving our skin, joints, and blood vessels strength and flexibility [1]. hEDS is a complex and often misunderstood […]

Ehlers-Danlos Syndrome (EDS) care: Why you need a whole team, not just one doctor

Ehlers-Danlos Syndrome (EDS) care is essential for managing this rare and complex genetic condition that affects the connective tissues in your body. This means it can impact everything from your joints and skin to your blood vessels, gut, and more. If you have EDS, you might experience overly flexible (hypermobile) joints, skin that bruises or […]